I don't know why it has taken me so long, but I finally wrote up a shortened version of Noah's story for Anencephaly.info. It is a wonderful resource of information - stories, pictures, facts, how to prepare, etc. Before Noah was born, and even after, I read all the stories of babies born with anencephaly and looked at all the pictures. Seeing that others had experienced the same thing and many of them praised God during and after gave me a peace and a hope for our future.
I pray that others who might be in the midst of their story might find hope and peace through reading ours.